is fibromyalgia the same thing as CFS?
I'm confused a lot by that.
I was "diagnosed" with CFS by a great, wise Indian doctor about 10 years ago when I wasn't benefiting from any of the meds I was on for what everyone said was Bipolar depression.
She asked me a battery of questions and even tested my immune system. When she found out I had "Mono" (from ABC gum, not kissing, I swear!) twice as a child she insisted it was CFS and put me on Wellbutrin which pretty much dug my cold dead body out of the well.
So yay for CFS diagnosis, BOO and also HISS for throwing that "label" on every person in America all at once because "NEW DRUGS, MORE MONEY, WOOHOO".
I have an LJ friend who has a son recently diagnosed with Aspergers, I am going to direct her to this!
Who knows what you had! CFS was a trendy diagnosis for a while and it was a catchall for a lot of problems, especially for women. At one point they thought it was caused by the very nasty Epstein-Barr virus, which also causes mono. Epstein-Barr is just bad news in every way.
Wellbutrin is a dopamine drug and can fix depression, addictions, and ADD related disorders sometimes. I don't know about its use with CFS.
Since my post is acerbic and somewhat anti asperger's diagnosis, your friend might well get mad at me. But my skeptical self says that anyone who gets that diagnosis should get a second opinion.
I just read through that entire link and WOW.
I have mentioned to her before that I think it's insane to slap a heavy diagnosis on a kid like that. It's like squashing his little morale before it even germinates.
Let him grow, keep close watch, encourage and raise your awareness accordingly, you know? It just makes me sad. There's enough people with real problems, lets teach our children to focus on helping them out!
wow, I just rambled in a fairly incoherent manner, as usual.
That's another dangerous diagnosis, again for social reasons. It's a nasty disease; people hurt badly and are exhausted. And more women than men get it. But it's also a catchall for "female trouble", and it's chronic and can't be fixed, so women get that as a dump diagnosis when they feel like shit.
And then later it turns out oops, you had rheumatoid arthritis the whole time, sorry about the five years of useless pain while we didn't give you treatment for that!
My Aunt with Lupus being a great example of that. :(
Or sorry about having you put up with buying pharmecuticals and suffering side effects for five years when your symptoms would have cleared up with a generic multivitimin and eight glasses of water a day. Yeesh, I am still amazed by how much of my general daily yuckiness is evidently caused by dehydration.
I am very glad they were able to help you.
If all it took to get you well was Wellbutrin you didn't have it. (Which is not to say that your medical issues were not real and serious, I just think they don't fall under this diagnosis.) Real CFIDS involves muscle pain, sleep disruption, and major cognitive problems. Underlying all this is massive immune system dysfunction; the brain symptoms are only an indirect result of this. Wellbutrin treats the brain directly. I can see it helping a few CFIDS patients, but it wouldn't be able to cure them, just mitigate their problems, because it doesn't help the immune system.
This is all in the research stage but I think that in the next ten years or so the researchers will finally concur on RNAse-L as the definitive test for CFIDS; it's a protein involved in immune function that's very low in CFIDS patients.
What does help CFIDS patients appears to be long term treatment with an arsenal of antibiotics, interestingly enough. But again, that's preliminary and controversial.
(CFIDS is what the community of patients prefer to call Chronic Fatigue Syndrome. It stands for Chronic Fatigue and Immune Dysfunction Syndrome, and is preferred on account of being more accurate. An official name change is in the works but hasn't yet made its way through channels.)
One of the other rules of modern medicine seems to be: when they can't figure out what the hell is wrong with you, it always turns out to be an immune disorder.
It's good to see that after all these years they're within hailing distance of a diagnosis or a treatment. The people I knew ten years ago who were dealing with this stuff were completely at sea.
Well, the antibiotics are pretty grueling and experimental, but they do seem to help a majority of patients pretty significantly. Unfortunately you spend the 18 months of treatment far sicker than you started so a lot of people are afraid to do it.
I do think there's some progress but unfortunately there's almost no funding. I think more funding would make a huge difference. Recently the funding has increased a little so that will help.
The Encyclopedia Dramatica is about as funny as an amputation without anaesthetic. Sorry.
You are completely incorrect... or correct depending on how funny you find primitive surgeries.
Either way, ED is the greatest website on the internet and the last great hope of western civilization.
I'll keep an open mind about Asperger's, even self-diagnosed, but Oppositional Defiant Disorder is two kinds of funny in one. Ick.
I have just discovered Alto-Arachnid Avoidance Syndrome, i.e. the tendency to avoid sweeping away the cobwebs on the ceiling. I have proved a genetic link, particularly among people of Pygmy descent.
I don't care what anyone says. That Encyclopedia Dramatica article is by far the funniest thing I have read all day.
My sister's boyfriend was diagnosed with the disease... After years of playinig Warcraft and being in the SCA...
That's pretty much what I was saying, but maybe I didn't get it across. That seems to be happening a lot lately.
It's very much the point of Osler's Web for example that a real disease was completely pooh-poohed because it showed up in middle-class American ladies, and that the women who didn't have the real disease still had a genuine global social problem that was going to make them feel like shit whether their immune systems had blown up in that specific way or not. Hence "the disease that women have" that I described in my first paragraph. which is genuine as a social problem no matter what the blood tests show.
I honestly thought I was very clear about the difference between the two problems.
I'm surprised there hasn't been mention of correlation between overdiagnosis and drug companies peddling their wares to doctors. Thank god my mutual funds are heavy in bio-med.